A story that begins with an encounter between a doctor and a patient, and is unique in the world.
An encounter with a patient with an intractable skin disease led to the birth of andew.
Epidermolysis bullosa.
It is a little-known disease with only about 2,000 patients in Japan.
It is an incurable disease in which the skin is turned over like a landslide because there is no protein that connects the skin to the skin.
And after interacting with patients for about two years, I realized that they had a very big problem with their diet.
"When I eat potato chips, it hurts like eating a plate with spikes."
The patient is described in this way.
In addition, because they are born with the disease, they need to live with it from childhood.
For growing children, the limitation of what they can eat is a big problem because it negatively affects their physical and mental growth.
People with epidermolysis bullosa mainly drink porridge, corn soup, and high-calorie sugary drinks.
While looking for something that could be eaten in solid form and melt in the mouth rather than a drink, I came up with the idea that chocolate would be a good choice.